Відео

Does an anti-inflammatory diet or mitochondrial diet help?

Please speed this research up!! Im young and suffering with this doc recently diagnosed me after suffering 3 years straight and well still am but i have 0 weakness just pain which mimics nerve issue aka differing sensational on skin neuromascular base on emg said I have Diffuse myositis whole body

This is awesome! Thank you so much for this labor of love ❤️

Such a great idea I'm going to buy a binder in the morning Thank you for your hard work.

Im watching from South Africa

R u talking about Polymiositis

The store is awesome Jess! Great job

I am 70 yr old female with the blood work of a 30 year old, totally negative except mild positive ANA. Skin biopsy is the only POSITIVE. I hurt so bad, bilateral and symmetrical swollen knees and ankles, thigh muscles so painful I cannot tolerate being touched. Heliotrope rash, skin on face looks like I have been burned and subsequent peeling of forehead, cheeks, chin. Nonsparing of rash in nasolabial folds. Thank God for a dermatologist who told me what she believed I had and the skin biopsy was positive. Rheumatologists need to look at their patients, and put the paper on the desk!

Swinging your legs and arms is "dynamic stretching" which should be done before exercising. Static stretching (slow sitting stretching) should be done after a workout.

Great stuff Megan! Thank you so much

I have both Dermatomyositis which has been very difficult to treat and still has not cleared up with IVIG. I also have CLL. I have had 5 different immune therapies. Currently I am in remission on the CLL. I have known about CAR-T for several years. would the T-Cells be re-engineered the same way and the same CDs for both medical issues?

🙏🏾We don't deserve this. Hang in there❤

Absolutely clear concise much needed information! Thank you

Watching from Denver, Colorado

I hear you . This disease is very unsettling. Day to day, you never know how you're going to feel. It drains you of your energy.

Read about Dr.Brooke Goldner and her recovery.

You’re amazing, Mary O.! 💗💗

Thank you!!

I got sick in 2021. I have necrotizing myopathy and I was only able to move my fingertips, toes and head from side to side I am 60 years old and have worked my whole life now I have 24 hour care and had to learn to walk, talk and feed myself. I thank god I have my husband and 4 children that all take one day with me. I wish you luck and pray that you stay healthy. Remember that god has a plan for everyone of us 🙏

Thank you for all of your updates

❤

I don't see the link to the webinar, was it recorded so we can go back and watch it?

So happy to have found this community. New to Myositis diagnosis and hoping for some clarification and support from MSU. Christine P

bless you ❤

Beginning is terrible! Can't continue to join!

You guys are so fun! Love this way of updating us.

Has the 25" to 27" seat height come out yet.

Thank you for sharing your experience with our awesome financial assistance program! So glad it helped you get what you NEED ❤

Thank you so much, Jessica, Jason and Benita!!!!

I just LOVE YALL!!! ❤❤❤❤ Please keep doing these!!!

where is part 1

my sister has IBM -Inclusion Myosititis, she had at least 4 covid vaccines! Now she walks with a cane & has been diagnosed with IBM

Amazing advise, thank you very much.

Thank you!!

Thank you for sharing ❤❤❤❤❤❤❤

This has been super helpful! Great tips around chronic fatigue and how to manage. I'm so grateful for this presentation.Thank you!

Hello! I was diagnosed with polymyositis last year and it has been a tough battle since then. This channel is helping me a lot with its valuable information. Thank you for sharing everything with us!

Wow! This was so helpful and affirming! Thank you so much for your time!

Dr Rohit Agarwal's email id may be provided.

I learned a lot. Thank you

Thank you for this video. I recently had a severe flare of PM. My CK went to 3300, difficulty of walking and I fell once while standing up unsupported. I had to take IVIG, and later take immunosupressant and methylprednisolone. Now my CK is around 300 and I don't have fever anymore. I have started to feel that some muscle function slowly coming back. I want to start physiotherapy next week. This video helps me in understanding the benefits of exercise and the progression that we can work for.

Is there an updated webinar?

thank you not only for sharing your story but for finding a way to continue to impact so many of our MSU family with your compassion, commitment, spirit, kindness and care... <3

Wonderful info !

Diet makes a huge difference and lifestyle ! Diet has been studied a lot especially in Functional Medicine that studies the body as a whole system . They get to the root cause of the disease ! And there is evidence of people over coming there autoimmune disease with natural treatments. Other doctors need to be more open to this!

48:20 similar experience ! but in 1992 i was in a research study at NIH , it was for IVIG treatments , and it saved my life. Mine affected my eating , swallowing , speaking also

I’m looking for a 1 to 25 tincture for situational anxiety in NY. Any idea where I might find this?

I was diagnose with dermatomyositis yesterday, however, I’ve never had the painful rash. Wondering if this could me a missed diagnosis?

Great common sense ideas for fall prevention. Thank you!

I need a grocery carry on shopping cart 🛒 and holding support fer me & power wheelchair ♿️.